September 1, 2014

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May is Cystic Fibrosis awareness month
Written by Submitted   
Tuesday, May 15, 2012 7:48 PM

Approximately 300 children born in Indiana this year will be diagnosed with cystic fibrosis or identified as a carrier for the disease, according to health officials. 

May is National Cystic Fibrosis Awareness Month. During this time, volunteers and people with CF and their families unite to help shine a spotlight on what CF is and the progress being made toward finding a cure.

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. People with CF have two genetic changes that cause the body to produce unusually thick, sticky mucus that clogs the lungs, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

Those with CF commonly experience frequent respiratory infections and digestive problems, such as failure to gain weight.

“Fifty years ago, most kids diagnosed with cystic fibrosis weren’t expected to live to attend school,” said State Health Commissioner Gregory Larkin, M.D. “Thanks to newborn screening and medical advances, most individuals with CF can now expect to live into their 30s and 40s. While this is a significant improvement, much more needs to be done to find improved treatments and a cure to this devastating disease.”

To learn more about Cystic Fibrosis, visit the Indiana State Department of Health’s website at www.StateHealth.in.gov or the Indiana Chapter of the Cystic Fibrosis Foundation at www.cff.org/Chapters/indiana/.